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L’éthique des cellules souches et les frontières de la vie humaine.

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Edition du genome, création d’organoïdes neuronaux dérivés de cellules souches, transplantations de cellules humaines … autant d’exemples d’avancées de la science du vivant et de biotechnologies développées dans l’objectif d’améliorer la santé humaine. Quelles sont les limites à la recherche dans le domaine des cellules souches (“a global patchwork of laws, policies, recommendations, proposals, conventions, and declarations ») et la justification morale de ces limites, notamment pour le développement humain et la reproduction. Les réponses seront débattues lors d’un workshop en ligne le 9 février prochain : Humain integrity at the frontiers of engineering life.

Click here to register to attend (either in-person or virtually) via Eventbrite. February 9, 9:30 am to 5:00 pm PST.

These Observatory workshops seek to illuminate the junctures at which scientific communities and their interlocutors in society do, or do not, engage with questions of limits: limits on what knowledge should be pursued, through what means, and how such knowledge should be translated into technological applications; limits on the range of ethical questions that should be asked, the scope of deliberation, and extent of participation within and beyond science; and limits on the forms of reasoning, evidence, and expertise that inform democratic deliberation and decisions on governance. How has the need for new limits been understood and approached in emerging research domains where codes of ethical conduct are not yet in place? How are expressions of ambivalence or disagreement about what research should or should not be done accommodated? What institutions, if any, do scientists see as serving their need for guidance or oversight in uncharted territories? What role are universities and professional bodies playing in addressing the demand for limits in a changing landscape? To what extent do institutional design choices and the framing of questions for debate reflect national traditions of expert or democratic deliberation? Given the complexity of the ethical landscape and the variety of processes at work in setting limits, these workshops are designed to think systematically about how limits to biotechnologies at the frontiers of human life are being defined and to identify salient issues and positions that may be receiving less attention than deserved. This workshop, therefore, seeks to further the Global Observatory’s mission of broadening the present scope of deliberation, centering not just on the limits themselves, but also on the processes that institutionalize them, the voices that contribute to them, the human values that animate them, and the forces that may push back against them“.

For further information on this event, please contact organizers Andy Murray (andymurray@hks.harvard.edu) or Alberto Aparicio (alberto_aparicio@hks.harvard.edu).

This event is organized jointly by the Global Observatory for Genome Editing and the UC San Diego Stem Cell Program.

 

 

 

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